More on MUMs
When I first thought of MUMs, it was meant to appeal two groups of mothers – mums who, like me, were in bereavement, and those who are living and caring for teens with cancer. After deeper thought, I decided that maybe the latter group would not be as open to the idea of such a support group because their child is still alive. Why would they want to see me or be part of the group? Especially in Malaysia, where such things are rife with taboos…
Today, I’m seeing things differently. I believe that these two groups can be integrated into one seamless body. After all, the primary target is mums, and the primary mission, to unite mums in a journey of hope and healing. And they don’t have to go on it alone. I figure, whether the child is still alive or not, that the point of the group is to support the mothers.
And there’s so much that can be done.
First off, mums in bereavement would have a loving space to share their pain, and know that they are not, and need not, be alone in their journey. Also, we could run or participate in workshops for bereavement management, acquiring skills to help us cope.
Mums who are living and caring for their terminally ill children can be supported by giving them time off to take little breaks for naps or a quick dash out to get stuff. We could even run short courses on how to care for our loved ones, both physically and mentally, in order to enjoy a better quality of life.
We could do camps for teens with cancer to meet with other such teens, allowing them to integrate with others who are going through the same journey. They could foster sharing, and bonding that is maybe rarely found in other groups. So they also know that they are not and need be alone in this.
We could encourage volunteerism amongst healthy teens to be with these special teens so that they may experience the values of giving and unconditional love, and the blessings of a healthy life. And we can create events, held outdoors in a park or open space, to make this happen.
I would also like to create a foundation which will be in the memory of my son, the JonGan Gift Legacy. The foundation is like a ‘Wish List’ from teens with cancer requesting for things to make their fragile lives more enjoyable. For example iPod Nano, latest Harry Porter book, toys, party, etc. We will not raise any monies to grant them their wishes rather we will route the list to invite charitable individuals or corporations to donate them. We will create a form for each request like biodata of the teen, supported with full address and contact numbers, and bits of information like hobbies, interests, etc. Each request will be authenticated by me or my representatives. I will also do this within the Klang Valley only to see how far I could go.
As this is a personal service, I am committed to make big or small requests happen. I believe God is on my side, and he will pave the way for this to happen.
I want to take small steps and even with small steps, I need help.
To raise awareness in the hope that mums would be open or ready to join me in forming a group, to help run this support group. Mums in beareavement. And mums who are living and caring for teens with cancer.
Only with enough mums from either groups could we implement steps that are empowering to both mums and teens living with cancer.
This would be my first task – to get mums to join me.
If you are a mum in this situation, or know someone who is, remember there is a place where you can come for support and encouragement, even as every day seems dire and empty.
14 Comments:
Hi Agnes,
I have read your new found foundation for JonGan Legacy Foundation n I want to say although I am a father n not a mother, my deepest thoughts r with these children and mothers who r sometimes suffering in silence.
Please feel free to contact me if u need help to raise awareness or even maybe contribution to the "wish list". I will try my very best in my capacity to help this foundation grow further. What is the next project to raise awareness for this foundation?
July 4, 2007 at 9:00 AM
Dearest Agnes,
I support this initiative. You know where to find me.
Lots of care,
Chau Chin & Yuk Peng
July 4, 2007 at 9:49 AM
Dear Jonathan,
I am moved by your support esp. for JonGan Legacy. My immediate task is to enrol mums for both entitities, ie. mums like me in bereavement, and mums caring teens with cancer, for it to run.
MUMs is not an NGO but a personal service run by individuals. At the moment I have 2 mums like who have not indicated if they want to part of this. I am also in the process of creating bookmarks to promote my cause and would like these to be distributed via bookshops or through angels like you. I am taking small steps, starting with my community, ie. Bangsar area. How do I contact you? Agnes
July 4, 2007 at 8:10 PM
Dear Chau Chin and Yuk Peng,
Yes I do know where to find you both. As mentioned, I am taking small steps and the first is walk the talk. Am waiting for response, and you could do to help to route my blog around your network of friends. I look forward to share more. God bless.
July 4, 2007 at 8:12 PM
Hi Agnes,
This is a great thing you're starting here.
I'm glad to be a part of it.
x louise
July 4, 2007 at 9:17 PM
Hi there Agnes, Finally got to read your blog. What a wonderful beginning. Of course the tears started flowing and I laughed too. I give the same answers "I am ok" when people around me asked me how I am. I really wonder how they will react if I were to tell them exactly how I feel instead of the automatic "I am well, I am ok type of reply". Hehehe guess if I did, I will need at least a couple of hours to tell them exactly how I am feeling and I know they will not ask me "How are you?" the next time we run into one another. Ya it is hard to think that 1 year is almost yup. And dont worry too much, your MUMs blog is great and really nice. Can't wait to see your next posting and to see you again. Hey I thought I am already part of your MUMs team? You have not included me yet??? ;-) Take care Agnes....in case nobody has told you, you are one awesome mom...hehehe even if 100 other people have said the same thing...you are still one awesome mom. Love, Aimee
July 4, 2007 at 11:25 PM
Hi Agnes,
I can help with the awareness part. Let me know how.
July 5, 2007 at 12:00 AM
Hey there Agnes,
U can reach me at my cell. U know where to find me. I can help distribute it around the Subang Jaya Community, the hospitals, Organic food stores and if possible, I have some ideas to approach some bigger organization to help support the cause. Hmm.. Maybe we should meet n brainstorm like old time sake. U r making me all excited. I think we should seriously consider registering this foundation. Don't be shy, CALL!!! when u need an extra hand. I have already email my extended friends to spread the word around on the foundation. Nobody calls me CNN for nothing.
July 5, 2007 at 8:19 AM
Let's approach the children clothing stores "Poney, Mother Care, KiKo, etc" and The Star paper, This coming year, The Star Fashion week, we will include Kids fashion show with "PONEY" designing children fall 2007 collection to build awareness for children with Cancer living in ASIA. Think ASIA firstlah... Certain amount of the proceeds will be contributed to the JonGan Legacy Foundation. This money is to help pay for some of the expenses like phone calls, food, overtime for workers. hmmm... Friend mustlah think big...Let the foundation eventually be able to suppport itself n be carried on to the next generationlah....
July 5, 2007 at 8:30 AM
Dear Auntie Agnes,
Wow, you certainly have gotten things under way! I remember you talking about doing, but i had no idea how far you've done. I'm glad things have gone well. If there's any way that i can help out, you know where i am!
And i know that Jon would never admit it, but he's probably proud as hell to have something done under his name ;)
Much love,
khalida
July 6, 2007 at 10:38 PM
Dear Ai Mee,
Yes I do remember you said you’d join me and even then I was not to clear about how to do it. I still don't know but I am not gonna spend any more time thinking, I'll go where MUMs take me. I take comfort in knowing that you are with me. On this note I would say..
WELCOME AI MEE AS THE FIRST MEMBER!
Let's get together sometime next week to catch up and talk some more..
July 7, 2007 at 8:27 PM
Dear Jonathan,
My daughter asked if I know you and I said I wasn't sure. Apart from my son, I know of two other persons who shares my son's name. One is married with a daughter, and the other Jon's senior at V.I. Could you be the one? If you are then you'll be Jon (Siaw?). Your last 2 notes got me excited and I really, really want to know who you are, if you please. Could you drop me a mail coz there isn't any forwarding addie that I could write to you personally. Thank you.
July 7, 2007 at 8:33 PM
Dear Agnes,
How wonderful! I think its great what you are doing. Can you imagine the
scope of MUMs? You have a really big heart and with Jon by your side,
this is going to be huge. This is going to help and touch lives and
loves. If there is any way I can help or do anything, even the smallest
task like scrub the floor, let me know. oh how scary wonderful. Just
reading it made me go all warm, teary and mushy inside. I wish you all
the best. I know it will go far and wide.
Much much love,
d
xxx
July 10, 2007 at 9:29 PM
Dearest Agnes
Your intention is beautiful and true. To take public what is so private and remember darling Jon so as to help others. May it find love and success wherever it goes.
I’m sure the focus on Mums is not in any way to discount Dads’ feelings. Dads have their own rainbows and rollercoasters; I dare say we cannot know the full name of the devastation and its nuances. But surely Mums are likely to encounter loss of a child, or its possibility, in an especial way; it must at least be biological having kept him or her in your own body for so many months. How can we know what each Mum feels? Well, now MUMs’ the word for those who might want to talk or need to share. Some Mums might rather not talk or do not need or want to share – as you have said, Agnes. And to me, this is also why your initiative is moving. It faces the possibility of rejection even as its intention is good. You’re starting it during a time of your own bereavement; perhaps you should be protected from any rejection.
It might be quite a struggle. It’s starting out small. But so be it, right? That’s what you’re saying. Every Mum is entitled to her own feelings. This is simply for those who might want to meet or just sit - who knows - with another who is going through a possibly similar experience. The initiative is to give comfort where comfort may be found. How wonderful.
The JonGan Gift Legacy. Jon would like it, I think. Like Khalida says, his name is right there!
I admire your good will, Agnes, even as part of me shies away from facing this in the cold, bright light of day. Jon is not around to discuss it without me imagining his smiles, animated eyebrows and gruffish voice.
It’s not true that the road to hell is paved with good intentions. Such cynicism has no place here!
Humour surely has, though. Jon Gan’s sense of humour: wonky, clever, generous! So perhaps an annual night of comedy would be a fine way to raise money and awareness? It won’t be for everyone. Not everyone can laugh about this. But it ain’t all doom and gloom either. So said Jon once.
To Agnes, Aimee (and all of us really – ‘Friends of MUMs’!), may you be blessed with more great ideas and never have a serious moment of regret.
peace and love,
Ann
July 12, 2007 at 6:55 PM
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